Archive for Scleroderma
During the first part of this video, I was close to tears. I’ve written about my deep connection to Hildegard’s life before. In college, I even made a pilgrimage to Bingen to visit Hildgard’s bones and the corner of earth where she lived. Fox starts with pictures of the places of her life, places I visited and then goes on to her illness and her awakening at the age of 41 or 42. I am close to turning 41 and have dealt with dramatic & debilitating illness for many years. There are obvious parallels and it hit me forcibly that Hildegard’s life is an exemplar for my own. Not that I could attain her genius and connection to the Divine, but I could attain her commitment to her creativity process, her respect and love of the physical world and possibly even a reprieve from illness although not necessarily how you may be imagining.
I have no expectation of my illness being lifted from me, but I do have hope. And this is, perhaps, why this video effected me so profoundly. I do have evidence that making art heals me. See here and here. But more than that, I have felt art remove the idea of illness from my system. When I work illness disappears. I’m just there. I enter a state where illness simply does not exist. It is state of freedom where I can embrace my physical nature bur not be burdened by it.
Most of my life, the physical world has seemed a burden to me. Once a long time ago, I met an amazing fellow, a pagan jewelry maker and musician of the highest caliber. He said something to me that was so shocking to my system that it shifted everything for me. He said:
I love this earth, I love the pleasure, the pain, the fight, the food, the suffering.
He said it with such relish. It was clear that he really did love being a physical being. It never occurred to me that anyone would want to do anything else but escape Earth and leave physicality behind. From that moment I considered for the first time ever, embracing my life on Earth. My illness which has bestowed so many gifts, helped force my down to Earth as well. By leaving me with little strength, I could not occupy my time with a million little distractions. It was just me and my body learning to dance for the first time.
Hildegard revived herself through her arts writing and painting, physical acts which channel Divine energy into the world. Throughout her work, she embraces nature and the Earth.
Oh greening branch.
O greening branch
O greening branch!
You stand in your nobility
Like the rising dawn.
Rejoice now and exult
And deign to free the fools we are.
From our long slavery to evil
And hold out your hand
To raise us up.
-Hildegard of Bingen
This is just one example of how she sees God in nature and nature as part of God. It was Hildegard’s job to express this. God rushed through her like Niagara Falls, pouring into this Earth. This is what Victor Frankl has to say about our purpose in life. (He is speaking about is time in a Nazi Concentration camp.)
We had to learn and we had to teach the despairing men that it did not really matter
what we expected from life, but rather what life expected from us. We needed to stop
asking about the meaning of life, and think instead of ourselves as those who were being
questioned by life—daily and hourly. Our answer must consist, not in talk and meditation,
but in right action and in right conduct. What matters, therefore, is not the meaning of
life in general but rather the specific meaning of a person’s life at a given moment.
Everyone has his own specific mission in life to carry out a concrete assignment, which
demands fulfillment. -Victor Frankl, Man’s Search for Meaning (Thanks Alive on All Channels)
I have my assignment. Hildegard is my example. Create, create, create.
You are in love with me,
I shall make you perplexed.
Do not build much, for I intend to have you in ruins.
If you build two hundred houses in a manner that the bees do;
I shall make you as homeless as a fly.
If you are the mount Qaf in stability.
I shall make you whirl like a millstone.
I spend a lot of time with kids. It’s wonderful and difficult at the same time. Children are brutally honest. As I’ve mentioned before, I have scleroderma. This condition has caused my hands & face to contract. It has also caused my jaw to come out of alignment so that my teeth do not meet up properly. In short, I look strange. This doesn’t usually bother me because I don’t think about it. That fact that my hands don’t open doesn’t really affect my life much except for a few things I’ve had to give up: piano, knitting & a few miscellaneous activities. Sometimes when I see a picture of myself from long ago I’m sad,
Anyway my point is, I am who am I regardless of my what I look like. There are some people who are perfectly gorgeous in everyway and are miserable. But that’s not me, I’m deformed but happy. But when I get around kids and they ask me why I look funny it does upset me because it’s a shock. I don’t remember I’m strange because I never think about it. I think this is God’s way of tempering me like a sword, throwing me into the fire to make me stronger.
To truly reflect the Divine in this world, we must learn to be present in every moment. We must be totally in the physical world without controlling it. It’s amazing how much I want to control the world. I want my face back, I want my hands. But I know that is just me controlling the flow of Divinity in this word. I won’t be a dam, I wish to be an open well, a channel between the ocean & the land. Clearing this channel takes letting go of everything I think I am.
Thank you hands that contract so I may expand
Thank you jaw that hangs open so I must speak
Thank you feet that ache so I must stay still
Thank you heart that weathers the storm so I may be washed clean
Thank You again and again
I have been inspired by so many who have shared their own mystical experiences, Hildegard of Bingen, Alex Grey, Meinrad Craighead, & Gartenfische to name a few, to share my own. I share this experience because it has everything to do with why and how I make my art and live my life.
In college, I had the good fortune to study in Florence. I was inundated, saturated with the energy of the Divine which is captured in those works of art & churches. I had never experienced such intensity before. I became particularly enamored of a Madonna & Child painting in a small shrine made in a former grain market, called Orsanmichele. The building was constructed around an open-air grain market where several healings had taken place which were attributed to the Virgin Mary. I visited this painting of Mary almost everyday for months and when I returned home I continued to pray to her.
One day when I was visiting my family, I had pulled the binds down in my old room and lain down on the bed to pray. I was holding a Mary medal which I used to wear around my neck and facing my old bookcase. I prayed for a long time running my fingers across the medal’s ridged surface when suddenly felt I was being watched. I opened my eyes and there was Mary’s head suspended over my stomach (my womb). I knew I was her without doubt. She was dark skinned and mysterious, the earth mother. I gasped and heard a loud pop. Mary disappeared and at the same moment I was filled utterly with a flash of blue light.
When the flash passed, my eyes were swimming like they do when exposed to something too bright. I noticed floating in my field of vision, a short dark column. It was the same experience as staring into a light bulb and upon looking away seeing dark dots float before you. I thought it was strange, such a distinct shape. So I got up and went to where the light had seemed to come from & where the shape also seemed to be coming from in my old bookcase which I hadn’t really looked through in years. There, wedged between two larger books and pushed slightly back so it was out of sight was a small (about 4”x 2.5”) black leather New Testament with gilt edges. Its spine was the exact shape and size of the dark mark floating around in front of my eyes. I knew with complete certainty this was where Light had come from. I had had no religious training at all. The only time I had every opened this Bible was when my Dad gave it to me at least 10 years earlier. At that time, I had opened it randomly and read just St. Luke’s description of the Annunciation.
It took me a long time to put together the fact that I had experience an annunciation of sorts although I only painted annunciation scenes for years after that. In my paintings, I always showed Mary as experiencing incredible fear. (See my early wood cut above. Sorry for the poor quality picture!) On the day I received the Light, the blue Light of creativity, I was given the job of being a vessel for this Light to enter into the world. This is a fearful task and I wasn’t up to it. I believe that is why I have been gifted with my illness, scleroderma- to prepare me for this sacred task. Having scleroderma has cleansed me of anger, bitterness & depression. Having scleroderma has taught me to be empty and surrender, although there is still much more to learn on that front! I pray to my Source everyday that I might be able to be a true vessel for the Light. Now my depictions of annunciations are no longer filled with fear.
This blue Light within is like a baby, it needs to be nurtured and cared for, protected and fed. This is the job of artists. Perhaps some might think artists are selfish or self-centered. Really they have turned inward to nurture this Light so that it may be infused into the world.
I’ve been thinking about a comment Gartenfische left on my post exploring St. Francis’ early illness about pain being a constant, but suffering being a choice. What makes us suffer over some things and not others?
I have a condition called scleroderma which has caused my hands to contract almost into fists. However, I don’t suffer over it at all. In fact the only time I ever think of it is when people stare. On the other hand, I suffer greatly with my menstrual cycle but only for a few hours a month. The first thing effects everything I do and yet doesn’t move me, the second effects me a few hours a month and takes a huge toll.
I have to ask why? And, then, I will have to ask what I need to polish within myself to clear the way for God. My attachment to suffering is like dirt on a mirror. It keeps me from fully reflecting my Source in my life and through my art.
When I was first introduced to Hildegard of Bingen in 1987, it was a revelation to me. First I was taken by her visions and writing, but it’s the story of her life that has really effected me. Hildegard lived a life of Divine direction. She was the youngest of 10 children and, as was common at the time, was place in a convent at a young age probably to defray costs. It was placement that she had no voice in. Early in her life she had visions. At some point she received a Divine message that she was to write down her visions. When she refused God’s will she became ill, when she wrote she was healed. Later, she had a vision that she was to leave her convent and found her own. Again she refused and again she fell ill. This time she was so sick that she couldn’t even be lifted from her bed. And again, when she accepted her calling she was healed. God literally directed her life.
Interpreting Hildegard #2-full series
Much of my life has been about forcing things to happen, pushing for my own desired outcome. But since I became ill with scleroderma, that has gradually changed. God has taught me through my illness to surrender control. Ironically, now even though my life is more limited in some ways because of lower energy and other issues, I am happier and more satisfied with my life. Things, people, guidance, you name it, flow easily into my life because now there is space; space that was filled before with my own pushing, my own foolish will. Now, I wait and God comes. Illness is a road map to the Divine- a precious gift.
When I first read Hildegard’s life story I only perceived her connection to God through her mystical visions. But really God spoke to her through every aspect of her life. I am grateful to have account of her life to guide me.